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Joey Ramos, Undiagnosed,

3/24/1981 - 4/1/2008

(MHBD) 2-Methyl-3-Hydroxybutyrl CoA Dehydrogenase deficiency
(2MBCD) 2-Methylbutyryl-CoA Dehydrogenase Deficiency
(HMG) 3-hydroxy-3 -methylglutaryl-CoA lyase deficiency
(3-MCC) 3-methylcrotonyl- CoA carboxylase deficiency
(MGA) 3-Methylglutaconic acidemia or 3-Methylglutaconyl-CoA Hydratase Deficiency
5-oxoprolinemia
(D2-HGA) D-2 Hydroxyglutaric Aciduria
(GA-I) Glutaryl CoA Dehydrogenase Deficiency Type I aka Glutaric Acidemia Type I
(ICBD) Isobutyryl-CoA Dehydrogenase Deficiency 3-Hydroxyisobutyric aciduria
(IVA) Isovaleryl CoA Dehydrogenase Deficiency aka Isovaleric Acidemia
(L2HGA) L-2-Hydroxy- glutaricaciduria
(MA) Malonyl-CoA Decarboxylase Deficiency aka Malonic Acidemia
(MMA) Methlymalonic Acidemia
(BKT) Mitochondrial Acetoacetyl CoA Thiolase- (3-Ketothiolase)
(MCD, holocarboxylase synthetase) Multiple carboxylase deficiency
(PA) Propionyl CoA Carboxylase Deficiency aka Propionic Acidemia
(HIBCH) 3-Hydroxyisobutyryl-CoA Hydrolase Deficiency

Our little Joe Joe
How would we know
How much we would love you so;

What you endured
Amazed us all;
You stood strong
You didn't fall;

You are our hero
And we will never forget
'The fight for your life
You never quit:
You'll remain forever in our hearts
Even though our lives are apart;

You taught us life, love and joy
You were a wonderful gift and
You were our "little" boy;

But God needed you up above
We have to believe its because of his love;
He knew you were struggling in this temporary life
Now you are whole and without strife;

We miss you so much; beyond belief
And we struggle now in our sadness and grief
But we know we will meet you again someday
So until then, we know you are okay

Love,
Mom and Dad

 


 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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