Josh, Age 23

Glutaric Acidemia, Type 1

Hi. My name is Josh, I am 23 and I have GA1 also known as Glutaric Acidemia Type 1. I have had this from age 2 it is cause from to much protein. I am a member of OAA so I can get people to come to my site and I can help them out by emailing and chatting with them. I like to help people with disorders and things. I have met people with the OAA and I helped them get a bill passed for newborn testing in West Virginia. I tell about that on my site. I would really like to tell more about me. I like to talk on the phone, chat, work and go for walks. Now more about GA1 and things. I use to go to Pittsburgh to the Children's Hospital. I use to go there for doctor appointments. I don't how much, but it was a lot. I haven't been there for years now. So I have been doing good. I am off my low protein diet. I was on it for years, but the doctors said I could be taken off it. I graduated school on the honor roll in 2002. I went to West Virginia Division of Rehabilitation Center in 2004 and they kicked me out in 2005 or something like that. I forget what year, but why they kicked me out is because they were scared I would fall and get hurt and get a law suit. I still don't think that was right. But you can read more on my site about it. That's the end of my story. My website is http://www.jkmga1story.info/index.htm.

Thanks your GA1 friend Josh

Josh
New Martinsville WV