Kristy, Age 46
Propionic Acidemia
I just celebrated my 5th year as a Kidney Transplant Survivor. I was diagnosed with Polycystic Kidney Disease and on March 6th, 2007 had a successful transplant at Cedars-Sinai Medical Center with my husband as my donor. He wanted to be the first one tested even before I began dialysis and he was a perfect match! In May, we will also be celebrating our 10 Year Wedding Anniversary. I am very blessed to have him.
While the transplant was greatly successful, I have been suffering from numerous other problems such as Headaches, IBS, and other Unexplained Abdominal Issues. I had a Colonoscopy/ Endoscopy performed in January, 2011 which showed I have Melanosis in the Colon, LA Grade Acid Reflux Esophagitis and Acute Gastritis. I have also been in contact with Christina T. Lam M.D. a Clinical Fellow in Medical Genetics at U.C. L.A. who is doing a study on me to see if my Kidney Disease or even if the Early Menopause I’ve suffered may be due to my Propionic Acidemia.
I am so thankful to Kathy Stagni for putting up with and answering my seemingly endless questions as I work through my many medical issues and also to everyone that puts together the OAA Newsletter. There are times when it is really comforting to remember that we are not alone with our diseases.
Kristy (pictured above with husband)
Cypress, CA.
From the Spring 2011 OAA Newsletter
