Tyler, Age 23
MMA, Cbl A
My name is Tyler. I am 23 years young. I was diagnosed with Methylmalonic Acidemia Cbl-A when I was 6 months old, after I had become very sick and fell into a coma. The coma only lasted a few days, and after a few rough patches of being sick, I am one of healthiest people I know. I am currently a junior at Portland State University. I take 2 classes/8 credit hours this spring term. I also work 21 hours (3, 7 hour days) a week at a retail store.
I am currently on low protein diet, though I do have some problems getting enough protein my dietitian recommends. When I was young, my parents made me special formula that I drank (2 or 3 times a day) to get my protein fill. I hated the formula and it was a chore to get me to drink it. I finally gave up on the formula after high school.
After high school, my mom suggested I drink carnation instant breakfast to replace the formula. I hated the instant breakfast and that maybe lasted 6 months or a year, off and on. After the carnation instant breakfast run, I just decided to eat more cheese pizza to keep up the protein intake. Up until a few months ago, the only high protein food I would eat on a regular basis (3 or 4 times a week) was the cheese pizza. My mom found this tasteless protein powder that you mix into some type of juice (I use no pulp orange juice). That has worked very well so far and it has been way better than the carnation instant breakfast and the formula. I drink it about 5 times a week in the mornings (when I have either work or school that day). I usually drink most of it, but the liquid does get a little chunky during the last ¼ of it.
I am very very picky eater. For meals, I usually eat french fries and hamburger buns or cheese pizza. I like different types of snacks, popcorn, cereals, cookies, vanilla ice cream, Popsicle, snow cone, and that’s all I can come up with off the top of my head.
Find me on Facebook
Check out Tyler's previous article here
From the Spring 2011 OAA Newsletter