• What Does Your State Screen For? Newborn Screening in the US by State
• Baylor Health Care Center - Dallas Institute for Metabolic Disease (Request a newborn screening kit)
• Mayo Clinic - Rochester, MN - Newborn screening
• National Newborn Screening & Genetics Newborn Center
• Pediatrix Screening Private Lab conducting expanded newborn screening/carrier testing
• March of Dimes
• Sudden Infant Death Syndrome (SIDS)
• National Coalition for PKU & Allied Disorders
• Expanded Newborn Screening using Mass Spec
• Sudden Unexplained Death in Childhood (SUDC)
• Save Babies Through Screening
• Save Babies Through Screening Foundation of Canada
• Perkin Elmer
• Kennedy Krieger Institute Mass Spec Lab
• Newborn Screening
• Jenna's Story MCAD - Newborn Screening in Canada
• Newborn Screening by Tandem Mass Spectrometry for Medium-Chain Acyl-CoA Dehydrogenase Deficiency: A Cost-Effectiveness Analysis Abstract of Article from Pediatrics, Nov 2003
• Minnesota Newborns At Risk - Press Release March 25, 2003
• Exceptional Parent Article by Kathy Stagni Newborn Screening & Support Groups

Free Newborn Screening Packets

(Save Babies Through Screening Foundation)

Packets for Parents is a program that provides free newborn screening
packets to expectant parents in the United States who are unable to pay
for them. Certain restrictions apply, and quantities are limited to a
specific number of packets each month.

National Coordinating Center for the Genetics and

Newborn Screening Regional Collaborative Groups

http://genes-r-us.uthscsa.edu/resources/genetics/StatePages/genetic_region_map.htm

In 2004, the Maternal and Child Health Bureau of the Health Resources and Services Administration (MCHB/HRSA), Genetic Services Branch (GSB) awarded grants to establish seven Regional Genetic Service and Newborn Screening Collaborative Groups (RCs) and a National Coordinating Center (NCC) as part of on-going efforts to improve the health of children and their families by promoting the translation of genetic medicine into public health and health care services. The NCC is formed as a partnership with the GSB/MCHB/HRSA through a cooperative agreement with the American College of Medical Genetics (ACMG). The NCC is organized around a central office and an Advisory Committee. The Advisory Committee includes the seven RCs and representatives of national organizations that serve as resources to the NCC and the RCs.

• New England Regional Genetics Group (Region 1)
• New York Mid-Atlantic Consortium for Genetic and Newborn Screening Services (Region 2)
• The Southeast Regional Genetics Group (Region 3)
• The Great Lakes Genetics Collaborative (Region 4)
• The Heartland Regional Genetics and Newborn Screening Collaborative (Region 5)
• The Mountain States Regional Collaborative Center (Region 6)
• Western States Genetic Services Collaborative (Region 7)