2016 FOD/OAA National Metabolic Family Conference
Westminister, CO
Click forAgenda - Subject to Change
Online Registration is Now OPEN - Click Here to Register - no charge to OAA Families!
Online Registration is Now OPEN - Click Here to Register - no charge to OAA Families!
2016 FOD/OAA conference update!
Westin Westminster http://www.westindenverboulder.com/
10600 Westminster Boulevard Westminster, CO, 80020 Phone: 303.410.5000
Hotel Online Room Reservation info and link. $120 per night (plus tax - this is a reduced conference rate) If you call make sure to tell them it is for the FOD/OAA Conference.
Our 2016 FOD/OAA International Metabolic Conference is for parents, family members, affected individuals, professionals and exhibitors that have an interest in Metabolic Disorders.
It is only through generous donations and sponsorships that the FOD Group and OAAare able to offer such an important opportunity every two years to Families and Professionals eager to learn more about our disorders. Our premier Sponsor/Host is The Metabolic Clinic at Children's Hospital Colorado and University of Colorado School of Medicine
If you are interested in helping our efforts as a donor or a Conference Sponsor please refer to each Group's website linked above or contact Kathy Stagni directly at mkstagni@gmail.com or call 763.559.1797!
Fatty Oxidation Disorders and Organic Acidemias are a group of rare metabolic disorders whereby fatty acids and protein, respectively, cannot be broken down in the body to be used as energy, especially in times of fasting or illness, and are treated through dietary changes and medications. When undiagnosed, severe medical complications and/or death can occur.
The importance of our Family Conference is to allow our members to meet other parents and professionals and learn more about their own or their child’s rare metabolic disorder. The focus for this conference is for Families to learn more about the medical management, nutrition and the social needs of caring for yourself or a child with a chronic disorder, specifically those with rare metabolic disorders. On Friday, we will have two separate sessions - one for the FOD Group and one for the OAA Group and there will be a Friday Night Reception from 6-8pm for Families and Speakers. Saturday we will meet in our separate rooms for networking, breakout sessions, and then finish up jointly with our Professional Panel Question & Answer time.
The conference is a wonderful opportunity for Families to meet each other and have the opportunity to speak with professionals on an informal level. Children are encouraged to attend the Friday night Reception and we offer a variety of snacks and drinks during the Reception.Breakfast and Lunch and snacks are provided to all Registrants on FRIDAY and there will be ONLY Breakfast and snacks on Saturday - the Conference ends at 12 noon. There will be NO LUNCH served on Saturday.
***
There is NO registration fee for FOD/OAA Family participants for the 2016 Conference - butyou will still need to complete a Registration Form for each member (age 5 and older) of your family/party attending! If you decide to register using the paper form on our websites, please mail the form to Deb Lee Gould, PO Box 54, Okemos, MI 48805. You can register up to 6 persons at one time.
Professionals $50 per registrant (ie, Drs, Genetic counselors, Dietitians etc) - pay via a credit card. One main contact can register up to 4 colleagues. If you decide to register using the printed Registration Form on our websites, please mail the form and a check (made out to OAA) to Deb Lee Gould, PO Box 54, Okemos, MI 48805.
Booth Exhibitors do NOT register on this site. Please contact OAA Director Kathy Stagni (mkstagni@gmail.com) for booth fee amounts. All checks will be sent to Kathy Stagni (checks made out to OAA) - Kathy Stagni 9040 Duluth Street Golden Valley, MN 55427
*** ANYONE age 5 and older MUST be registered. All sitters MUST be registered.***
This is to provide advance accurate numbers for meal preparations.
Hotel Online Reservations: Attendees are responsible for making their own hotel reservations. Prices will be in effect 2 days before the conference dates of July 8 and 9, 2016. If you have special requirements (e.g., refrigerator, microwave, crib, etc.) please let them know when you call call to make a reservation. No extra cost for refrigerators. Rooms start at $120 per night (plus tax) - this is the group discounted rate.
****Use the link below to book hotel rooms ONLINE for this conference****
ONLINE Hotel Reservations: Guests can access the FOD/OAA Conf link below to learn more about the event and to book, modify, or cancel a reservation from September 30, 2015 to June 24, 2016.
https://www.starwoodmeeting.com/events/start.action?id=1509306953&key=146CCF37
Hotel info & Conference:
Westin Westminster http://www.westindenverboulder.com/
10600 Westminster Boulevard
Westminster, CO, 80020
Hotel Phone: 303.410.5000 Reservations by Phone: 888.627.8448
Hotel Phone Reservations: Reservations by Phone: 888.627.8448 and state your reservation is for the FOD/OAA International Metabolic Conference to ensure you are billed at the reduced conference rate - starting at $120.00 per night (plus tax). If you have special requirements (e.g., refrigerator, microwave, crib, etc.) please ask to reserve them. No extra cost for refrigerators.
Airport: Denver airport http://www.flydenver.com/parking_transit
8500 Peña Blvd Denver, Colorado U.S.A. 80249
Here are some links for transportation options from the airport to the hotel.
Shuttle service from DIA to Westin. http://www.supershuttle.com/Locations/BoulderDEN
Metro Taxi: http://www.metrotaxidenver.com/wheelchair-accessible/
Yellow Taxi: http://www.denveryellowcab.com/OurRates.aspx
DIA Accessibility information: http://www.flydenver.com/traveler_services/accessibility
Travel: Attendees are responsible for their own travel accommodations to and from the conference. Speakers will coordinate through Deb and Kathy for both hotel and travel arrangements.
Meals: The hotel chef will be coordinating with us to provide a wide variety of food options for conference meals (Friday Breakfast and Lunch, the Friday night Reception, and Saturday Breakfast (NO Lunch is served) are for all Registered attendees ONLY) to include low-fat and low protein foods to accommodate our families' needs. All other meals are your responsibility. The online registration form will allow you to make a list of any special dietary requirements needed. The hotel chef will make accommodations whenever possible.
Child Activity Room: We will have an activity room for children - however, each family will be responsible for providing someone to supervise their child(ren) (e.g., grandparent/sitters) and those persons must also be registered. We are also looking for local volunteers to help in the room by providing drawing activities, games, videos, etc. Children are allowed in the conference sessions only IF they can do so quietly. Disruptive, noisy children must be removed from the session as a courtesy to all other participants. Older children and teens are encouraged to attend sessions - every child intending to dine at the conference meals (Friday and Saturday breakfast and lunch and Friday night reception) must be registered. ANYONE age 5 and older MUST register. All sitters MUST be registered. This is to provide advance accurate numbers for meal preparations.
Registration Form: Online or by mail (the regis form will be on www.fodsupport.org andwww.oaanews.org) - Only Registrants will have access to our Conference Breakfast&Lunch on Friday and Breakfast on Saturday, as well as the Friday night Reception for Families, Professionals, Exhibitors, and Speakers.
Printed forms [and Professional checks made out to OAA] can be mailed to:
Deb Lee Gould/FOD Group
PO Box 54
Okemos, MI 48805
Have questions about 2016 FOD/OAA International Metabolic Conference? Contact FOD Family Support Group and Organic Acidemia Association
Kathy Stagni
Executive Director
Organic Acidemia Association
10600 Westminster Boulevard Westminster, CO, 80020 Phone: 303.410.5000
Hotel Online Room Reservation info and link. $120 per night (plus tax - this is a reduced conference rate) If you call make sure to tell them it is for the FOD/OAA Conference.
Our 2016 FOD/OAA International Metabolic Conference is for parents, family members, affected individuals, professionals and exhibitors that have an interest in Metabolic Disorders.
It is only through generous donations and sponsorships that the FOD Group and OAAare able to offer such an important opportunity every two years to Families and Professionals eager to learn more about our disorders. Our premier Sponsor/Host is The Metabolic Clinic at Children's Hospital Colorado and University of Colorado School of Medicine
If you are interested in helping our efforts as a donor or a Conference Sponsor please refer to each Group's website linked above or contact Kathy Stagni directly at mkstagni@gmail.com or call 763.559.1797!
Fatty Oxidation Disorders and Organic Acidemias are a group of rare metabolic disorders whereby fatty acids and protein, respectively, cannot be broken down in the body to be used as energy, especially in times of fasting or illness, and are treated through dietary changes and medications. When undiagnosed, severe medical complications and/or death can occur.
The importance of our Family Conference is to allow our members to meet other parents and professionals and learn more about their own or their child’s rare metabolic disorder. The focus for this conference is for Families to learn more about the medical management, nutrition and the social needs of caring for yourself or a child with a chronic disorder, specifically those with rare metabolic disorders. On Friday, we will have two separate sessions - one for the FOD Group and one for the OAA Group and there will be a Friday Night Reception from 6-8pm for Families and Speakers. Saturday we will meet in our separate rooms for networking, breakout sessions, and then finish up jointly with our Professional Panel Question & Answer time.
The conference is a wonderful opportunity for Families to meet each other and have the opportunity to speak with professionals on an informal level. Children are encouraged to attend the Friday night Reception and we offer a variety of snacks and drinks during the Reception.Breakfast and Lunch and snacks are provided to all Registrants on FRIDAY and there will be ONLY Breakfast and snacks on Saturday - the Conference ends at 12 noon. There will be NO LUNCH served on Saturday.
***
There is NO registration fee for FOD/OAA Family participants for the 2016 Conference - butyou will still need to complete a Registration Form for each member (age 5 and older) of your family/party attending! If you decide to register using the paper form on our websites, please mail the form to Deb Lee Gould, PO Box 54, Okemos, MI 48805. You can register up to 6 persons at one time.
Professionals $50 per registrant (ie, Drs, Genetic counselors, Dietitians etc) - pay via a credit card. One main contact can register up to 4 colleagues. If you decide to register using the printed Registration Form on our websites, please mail the form and a check (made out to OAA) to Deb Lee Gould, PO Box 54, Okemos, MI 48805.
Booth Exhibitors do NOT register on this site. Please contact OAA Director Kathy Stagni (mkstagni@gmail.com) for booth fee amounts. All checks will be sent to Kathy Stagni (checks made out to OAA) - Kathy Stagni 9040 Duluth Street Golden Valley, MN 55427
*** ANYONE age 5 and older MUST be registered. All sitters MUST be registered.***
This is to provide advance accurate numbers for meal preparations.
Hotel Online Reservations: Attendees are responsible for making their own hotel reservations. Prices will be in effect 2 days before the conference dates of July 8 and 9, 2016. If you have special requirements (e.g., refrigerator, microwave, crib, etc.) please let them know when you call call to make a reservation. No extra cost for refrigerators. Rooms start at $120 per night (plus tax) - this is the group discounted rate.
****Use the link below to book hotel rooms ONLINE for this conference****
ONLINE Hotel Reservations: Guests can access the FOD/OAA Conf link below to learn more about the event and to book, modify, or cancel a reservation from September 30, 2015 to June 24, 2016.
https://www.starwoodmeeting.com/events/start.action?id=1509306953&key=146CCF37
Hotel info & Conference:
Westin Westminster http://www.westindenverboulder.com/
10600 Westminster Boulevard
Westminster, CO, 80020
Hotel Phone: 303.410.5000 Reservations by Phone: 888.627.8448
Hotel Phone Reservations: Reservations by Phone: 888.627.8448 and state your reservation is for the FOD/OAA International Metabolic Conference to ensure you are billed at the reduced conference rate - starting at $120.00 per night (plus tax). If you have special requirements (e.g., refrigerator, microwave, crib, etc.) please ask to reserve them. No extra cost for refrigerators.
Airport: Denver airport http://www.flydenver.com/parking_transit
8500 Peña Blvd Denver, Colorado U.S.A. 80249
Here are some links for transportation options from the airport to the hotel.
Shuttle service from DIA to Westin. http://www.supershuttle.com/Locations/BoulderDEN
Metro Taxi: http://www.metrotaxidenver.com/wheelchair-accessible/
Yellow Taxi: http://www.denveryellowcab.com/OurRates.aspx
DIA Accessibility information: http://www.flydenver.com/traveler_services/accessibility
Travel: Attendees are responsible for their own travel accommodations to and from the conference. Speakers will coordinate through Deb and Kathy for both hotel and travel arrangements.
Meals: The hotel chef will be coordinating with us to provide a wide variety of food options for conference meals (Friday Breakfast and Lunch, the Friday night Reception, and Saturday Breakfast (NO Lunch is served) are for all Registered attendees ONLY) to include low-fat and low protein foods to accommodate our families' needs. All other meals are your responsibility. The online registration form will allow you to make a list of any special dietary requirements needed. The hotel chef will make accommodations whenever possible.
Child Activity Room: We will have an activity room for children - however, each family will be responsible for providing someone to supervise their child(ren) (e.g., grandparent/sitters) and those persons must also be registered. We are also looking for local volunteers to help in the room by providing drawing activities, games, videos, etc. Children are allowed in the conference sessions only IF they can do so quietly. Disruptive, noisy children must be removed from the session as a courtesy to all other participants. Older children and teens are encouraged to attend sessions - every child intending to dine at the conference meals (Friday and Saturday breakfast and lunch and Friday night reception) must be registered. ANYONE age 5 and older MUST register. All sitters MUST be registered. This is to provide advance accurate numbers for meal preparations.
Registration Form: Online or by mail (the regis form will be on www.fodsupport.org andwww.oaanews.org) - Only Registrants will have access to our Conference Breakfast&Lunch on Friday and Breakfast on Saturday, as well as the Friday night Reception for Families, Professionals, Exhibitors, and Speakers.
Printed forms [and Professional checks made out to OAA] can be mailed to:
Deb Lee Gould/FOD Group
PO Box 54
Okemos, MI 48805
Have questions about 2016 FOD/OAA International Metabolic Conference? Contact FOD Family Support Group and Organic Acidemia Association
Kathy Stagni
Executive Director
Organic Acidemia Association
