Informational Websites
- Urea Cycle & Organic Acidemia overview for younger children
- Genes in Life
- National Coordinating Center for Genetic Service Collaboratives
- Inborn Errors of Metabolism in Infancy: A Guide to Diagnosis
- National Institutes of Health (NIH)
- Carnitor (Medication for Organic Acidemias)
- Leadiant Biosciences - formerly, Sigma Tau Pharmaceuticals
- Clinical Approach to Genetic Cardiomyopathy in Children
- USDA Nutrient Database for Standard Reference
- Family Village
- Society for Inherited Metabolic Disorders (SIMD)
- Society for the Study of Inborn Errors of Metabolism (SSIEM)
- General Clinical Research Center (GCRC)
- Coriell Institute for Medical Research Study
- Kennedy Krieger Institute Genetics Laboratory
- American College of Medical Genetics
- Someone Special - Personalized books created by a Propionic Acidemia mother and her friend
- Emergency Preparedness Strategies & Resources (Genetic Allaince)
- Medical Mistakes Affecting Children with metabolic disorders and other rare diseases
Other Support Groups
- Fatty Oxidation Communication Network (FOD Support)
- GA 1 Family - GA 1 Support in Spain
- ASFEMA - METABOLICS, PKU OF MADRID BLOG
- MSUD Family Support Group
- MERD India (Metabolic Errors and Rare Disease Organization in India)
- Connecting Families, UCD Foundation (Urea Cycle Support Group)
- National Urea Cycle Disorders Foundation
- National Organization for Rare Disorders (NORD)
- The Genetic Alliance
- National PKU Alliance
- National PKU News
- NKH - International Family Network (Non-Ketotic Hyperglycinemia)
- CLIMB - Children Living with Inherited Metabolic Diseases
- United Mitochondrial Disease Foundation
- Barth Syndrome Foundation
- Children's Cardiomyopathy Foundation
- Melissa's Dad: A Blog