Informational Websites

• EIMD  European Registry and network for Intoxication type Metabolic Diseases 
• Urea Cycle & Organic Acidemia overview for younger children
• Genes in Life
• National Coordinating Center for Genetic Service Collaboratives
• Inborn Errors of Metabolism in Infancy: A Guide to Diagnosis
• National Institutes of Health (NIH)
• Carnitor (Medication for Organic Acidemias)
• Leadiant Biosciences - formerly, Sigma Tau Pharmaceuticals
• Clinical Approach to Genetic Cardiomyopathy in Children
• USDA Nutrient Database for Standard Reference
• Family Village
• Society for Inherited Metabolic Disorders (SIMD)
• Society for the Study of Inborn Errors of Metabolism (SSIEM)
• General Clinical Research Center (GCRC)
• Coriell Institute for Medical Research Study
• Kennedy Krieger Institute Genetics Laboratory
• American College of Medical Genetics​​
• Someone Special - Personalized books created by a Propionic Acidemia mother and her friend ​
• Emergency Preparedness Strategies & Resources (Genetic Allaince)
• Medical Mistakes Affecting Children with metabolic disorders and other rare diseases

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Other Support Groups

• Fatty Oxidation Communication Network (FOD Support)
• GA 1 Family - GA 1 Support in Spain 
• ​ASFEMA - METABOLICS, PKU OF MADRID BLOG
• MSUD Family Support Group
• MERD India (Metabolic Errors and Rare Disease Organization in India)
• Connecting Families, UCD Foundation (Urea Cycle Support Group)
• National Urea Cycle Disorders Foundation
• National Organization for Rare Disorders (NORD)
• The Genetic Alliance
• National PKU Alliance
• National PKU News
• NKH - International Family Network (Non-Ketotic Hyperglycinemia)
• CLIMB - Children Living with Inherited Metabolic Diseases
• United Mitochondrial Disease Foundation
• Barth Syndrome Foundation
• Children's Cardiomyopathy Foundation
• Melissa's Dad: A Blog