Lindsey, age 39
MMA Mut 0
Methylmalonic acidemia is the birth disorder I have. It is very rare the oldest one with my type of this disorder. When I was born was 14 years old there are two different types of this disorder 1 type responds to vitamin b shots and low protein diet and live almost normal lives the other type is non responsive to vitamin b shots still treated with a low protein diet but this is the kind I have . This disorder cause many different issues kidney failure stroke coma and death. There was an article publish a while ago about a mother accused of killing her unborn child because of this condition. This was just one instance though but this disorder used to kill a lot of babies because there used to be no tests to detect for it. My mom thought I was normal until about two weeks after I was born then she knew something was wrong and kids usually die at 5 or 6 years old with my type of this disorder.
I'm 39 years old and the oldest living one with my condition as far as anyone knows and I keeps on beating odds and will continue to beat the odds I've had a kidney transplant and am going to need another one because when I was born I had two tiny kidneys and they don't work properly any more. doing my best to teach about this and by the way because of my medical condition I have to take a lot of meds sodium bicarb being the most important except for transplant meds of course and of course weak muscle tone is also involved with this condition too and I’ve been through two comas as far as I know of. and I'm also asexual which is a rare sexual orientation that has very little to no sexual attraction meaning I've still have my crushes but I don't get the urges to get "poked" as people call it. I never had the urge to do that or anything like that. I'm hetero romantic asexual which is explains the crushes part they are emotional not sexual. I also won this pageant for being Ms. Gay Olympia this year so I’ve gotten to travel to Oregon and Vancouver this year.
From the Fall 2018 OAA Newsletter