Shiekh Muhammad, 5 years, Propionic Acidemia
Since my last article in the newsletter, we welcomed our second child, Alhumdulillah on December 22, 2018. We were very worried whether our baby would have PA or not. In my early stages of pregnancy we couldn't go for check up. So we waited for baby birth and tests. I had a C-section and my baby was not given to me after birth. They sent her to another hospital where test were possible. My son, Muhammad was left with his grandmother, who came from Pakistan to look after him, but he was not familiar with her at that time. My husband remain home at night because my son Muhammad always sleep with his baba (father).
The decision for second baby was not so easy but now my daughter is 1 years old and both brother and sister have great bounding. My little one has great love for his brother, but my son’s way of love is bit hard. (he shows his love by biting -- maybe he thought its love?). Actually my PA son Muhammad is also a special kid and victim of autism but still he accepts his sister presence. It is a beautiful sight when I saw them. If one is sleeps the other is curious that why he sleeps and want to wake each other.
Having two kids is totally and very tough when there is a hospitalization. We are all with Muhammad ---fighting this disease and other health issues. Muhammad is 5 now and has improved his walking and he also say mama. First time in 5 year! He is still using diapers. His muscle tone is weak and immune system too. We will try as parents and I know his little sister too wants her brother to play with her. Where ever my son goes my little one follow him. I wish good health for both.
Zareen
Oman
Zareenzaigham416@gmail.com
The decision for second baby was not so easy but now my daughter is 1 years old and both brother and sister have great bounding. My little one has great love for his brother, but my son’s way of love is bit hard. (he shows his love by biting -- maybe he thought its love?). Actually my PA son Muhammad is also a special kid and victim of autism but still he accepts his sister presence. It is a beautiful sight when I saw them. If one is sleeps the other is curious that why he sleeps and want to wake each other.
Having two kids is totally and very tough when there is a hospitalization. We are all with Muhammad ---fighting this disease and other health issues. Muhammad is 5 now and has improved his walking and he also say mama. First time in 5 year! He is still using diapers. His muscle tone is weak and immune system too. We will try as parents and I know his little sister too wants her brother to play with her. Where ever my son goes my little one follow him. I wish good health for both.
Zareen
Oman
Zareenzaigham416@gmail.com